Spring Break Adventures at the Koch House

Rebecca is home for Spring Break.  I am not there, because I am in North Carolina with my mom, who is in hospice.  Rebecca and Paul were supposed to come up here this weekend, but Dad requested that they not come, due to the current Coronavirus scare.

A few days ago, we were able to do FaceTime between my mom and Paul and Rebecca using my nephew’s phone and Michelle’s old iPhone.  We all have Android phones, and couldn’t figure out how to make that work, but then I remembered that I still had that phone plugged in at home, so Paul took it out and used it.

About 1:30 this afternoon, I hear the home doorbell go off on my phone (we have a home security system, and they have a phone app).  I looked at my phone screen, and there is a whole EMS crew entering my house, complete with a stretcher!  I freak out, and call the house.  Meanwhile, I notice a text that says, “Mom” was sent to my phone from MICHELLE’S phone at 1:20 pm.

Rebecca must have wanted to see/talk to me today, so she went and got Michelle’s phone, and when she couldn’t figure out how to get in touch with me, she called 911 to help find me instead.

Poor Sarah didn’t know what was going on – a fireman opened up her bedroom door….

We finally got everything figured out – the EMTs left, and Michelle’s phone is now safely tucked away in Sarah’s room until I get back home in another couple of weeks.

Oh, well – just another day at the Koch’s house!

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Marking Time

 

Mom woke up at 11 last night and said that there was a change in the milk and that I needed to tell them about it (her father drove a milk truck when she was very young).

She woke up this morning and said that she knows this is the end and she just wanted to see my nephew (who got in town last night) and Dad.

Both of them have been here all day. Mike has an iPhone, so we were able to let Mom do FaceTime with her middle sister and BIL, Paul and Rebecca, and Rachel and her husband. Her youngest sister was here this weekend.

She complained of a new pain in her torso twice today, so she has been on medication all day. Hospice has stronger drugs already on board, if we need them.

All of the “boxes” have been checked. I’m just standing watch now.

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Moms Say the Darnedest Things

Tonight about 8:15, my mother woke up from a deep sleep and called someone on the phone, telling him, “Don’t let those people take your money from you.”

I had ear buds in, watching a movie on my Kindle, heard her, and at first thought she was talking to my dad, since they had been joking about widows on the prowl.

Nope.

She had dialed up Paul, and was just chatting him up.

I guess I’m going to have to take her phone away from her after it gets dark….

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Happy 88th Birthday, Dad!

Today is my Dad’s 88th birthday. I can’t tell you how very glad I am that he is still here to celebrate with us – Paul lost his father a few years ago, and it is a loss that he feels every day.

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The Man Behind the Woman

 

As most of you know by now, I am in North Carolina helping out with my Mom and Dad during Mom’s last days.

Everyone has been so nice – sending prayers and thoughts to the family, and telling me how wonderful it is that I am here doing so much for both of my parents.  Thank you so much for that.

However, there is someone else just as deserving of your praise.  Were it not for my incredible husband, Paul, I would not be able to be here.  Paul has gone above and beyond back in Fort Worth, taking care of all of the business at home so that I can help take care of things here in North Carolina.

Poor guy – I hadn’t been gone very long and he, Rebecca, AND Sarah all came down with the flu!  It’s hard enough when one family member gets sick, but when there isn’t any back-up, things can get pretty miserable rather quickly.  Fortunately, we have wonderful friends who were able to pitch in and help out at home.  We are truly blessed.

I think the longest time that we have been apart without seeing each other is 4-5 days whenever Paul has to go out of town on business.  There was a 2-month stretch back in 2015 when I had to be in the hospital due to a medical emergency, but Paul was able to visit every day.  So far this time, we have been apart over two weeks, and we are both missing each other.  Fortunately, Paul and Rebecca will be coming for a short visit next weekend.

They always say that behind every successful man there is an equally important woman, but I am here to tell you that behind this “strong” woman, there is an amazing, strong, indispensable, funny (and handsome!) man – my favorite fella, and the most wonderful husband in the world, Paul.

I am so incredibly lucky.

 

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A (Not So) Super Tuesday

 

Mom entered hospice today.

She woke up and announced that she wants to go.  Things are starting to deteriorate a little bit more quickly now – she is asking for pain medication more frequently, she is more uncomfortable, she is sleeping much more, and tonight I am noticing that her breathing is starting to become more labored.  She is having swelling in her arms and legs, and she is virtually unable to move her body without significant help.

Family members have been apprised of the situation and are making plans to get here when they can.  Both of her sisters have other family members in the hospital right now, so I am scrambling to figure out how to set up something to allow them to see each other from their various vantage points.  Our respective technologies are incompatible with each other, so we are going to have to be creative.

Dad and I are just marking time.  His 88th birthday is on Friday – it will be his last one with Mom.

I am doing what I can to make sure that Mom is comfortable.  Being here with her 24/7 has allowed me to stay on top of most things in a timely manner, but we are entering new territory with the pain angle.  Hopefully we will continue to manage things as quickly as possible.  The staff at the care center have been an immense help.

The end is on the horizon.  I’m not ready for this, but Mom is more than ready, and that is what allows me to hold it together for now.  Her journey is almost at an end.

I am blessed to be able to help her see it through.

 

 

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Nearing The End

Mom is tired.
She told me tonight that she is ready for Hospice.
She says that she will probably see Michelle first, then her mother, then Bev.

I can’t imagine a world without her in it, but she is ready to go.
I promised her that I would be strong.
Being strong means letting her go.

Please, God, give me strength.

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Thoughts In The Middle Of The Night

 

 

It is true what they say – as you get older, you progress from a child to the parent of your own children, and then one day you find yourself parenting your parents as their bodies and minds become frailer.

My mother is at that stage now – her body is becoming weaker due to the ravages of cancer.  She has done well up to this point, but she fell at home last week and was unable to get back up – her legs would not support her any more.  She is now in a hospital bed at an assisted living facility, and she will probably not ever be leaving that bed.

Four years ago, she was the one helping me when I found myself confined to a hospital bed for two months following intestinal surgery.  I now find myself drawing on that experience to give her suggestions on how best to reposition herself to find a comfortable place to rest.

I remember how utterly exhausting it was just to turn over in bed, and how many “steps” it took to do something that I had done almost mindlessly before the surgery.  I find myself uniquely qualified to empathize and to help her get from point A to point B.

The major difference between then and now is that I was on the road to recovery, while she is on a decline.  She is finding it harder and harder to do things.

I had forgotten how hard it is to THINK when you are laid low by disease – so much energy is spent just thinking about how to do the most basic of movements.  By the end of the day, there isn’t any juice left to make decisions; you quite literally find yourself telling others to just do whatever they think is best.  It’s very frustrating.

I remember how incredibly comforting it was to know that my mom was going to be there in that hospital room with me every day; that everything was going to be okay, and that she would be able to get me the things that I needed.  I remember how utterly lost I felt when she had to go back home after so many weeks by my side, and how she stayed an extra week because both of us instinctively knew that was what I needed.

And I know that I will now be able to provide that peace of mind and spirit for her, for as long as she needs it.

I know that our time together is coming to an end.  I see her looking off into space, and I can tell that it is “different” from ordinary daydreaming.  She told me yesterday after one of her naps that she thought that she had passed over to the other side.

I know that she is slipping away, and I am so very thankful that I can be with her on the final leg of her journey.

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The Story So Far

Mom has finally(!) given me permission to tell everyone what is going on.

Last August, she was given a diagnosis of Stage 4 (metastatic/terminal) lung cancer which had already spread to her lymph nodes and bones. She decided not to undergo any further treatment, choosing instead to enjoy whatever time she had left.

We have been fortunate that she has had six relatively good months since her diagnosis, but her body is starting to tell us that the end is near. Mom was moved to an assisted living facility last week, and we are in the process of enlisting hospice care for her. Paul and Sarah are holding down the fort at home in Texas so that I can concentrate on caring for both of my parents on the final leg of this journey.

I am currently staying with Mom 24/7 so that Dad can be free to take care of things in town and around the house, as well as getting some much-needed rest. Mom is comfortable right now, and I am cherishing every moment that we have left together.

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Bittersweet Moments

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When time is short, and you are blessed enough to be able to be there for the ones who have been there for you since the beginning of your life……

I am so thankful.

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